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350,000 Stories
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More Than A Few Good Men and Women Lou Gehrig and Stephen Hawking. Morrie Schwarz, of Mitch Albom's Tuesdays
with Morrie. Bruce Edwards, Tom Watson's longtime caddie. They are a few ALS patients whose stories of courage
and perseverance are well-known.
Yet there are so many more stories, so many more patients--perhaps less renowned,
but every bit as inspiring as their famous counterparts.
ALS affects over 350,000 of the world’s
population, and it kills over 100,000 every year. They are like you. They love and are loved. They are husbands, wives,
fathers, mothers, sons, daughters, brothers, sisters. They are ordinary people thrust into extraordinary circumstances.
Each and every one of those patients has a story to tell. Here are links to just a few of them.
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Brainhell.com
The name alone is a good clue what to expect in this incredible can't-tear-your-eyes
away chronicle from a January 2004 ALS diagnosis through his death in February 2008.
Brainhell.com
Robert in New Zealand In
sharing a New Zealander's perspective on life with ALS, Robert provided thought-provoking commentary before losing
his battle with this dreadful disease. Half the world away, separated by miles as well as decades, he and Aimee shared a unique
bond—one that enabled him to articulate what she
was experiencing as if he were reading her mind. Find his site and peruse his thoughtful posts by clicking this link:
Stuart Bridges Healthy. Active. A highly-ranked tournament tennis player in the southwestern
U.S.
Until he choked on a waffle...
Stuart's story
Martyfest.com
Check out "martyfest.com"
to see what fellow ALS patient and friend Marty is up to...
www.martyfest.com
Dave Chilcoat's Site
This site
chronicles Dave's intense spiritual journey and unyielding faith in God that saw him through his battle with ALS,
a fight he ultimately lost in August 2006. His wife, Beth, continues to keep up the journal, posting moving entries about
her own journey.
Dave Chilcoat's Site
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Moira-Anne in New Zealand Another friend with a fighting spirit, Moira-Anne keeps her sense
of humor firmly in place as she shares her experience of living with ALS/MND. Her uplifting and poignant blog can be
found by clicking the following link:
Jeannie's Place
Jeannie's candid stories about treatment options and her wry humor in dealing
with everyday life make her website a must-see. Check out her site by following this link:
Jeannie's Place
Jessica's Story
Jessica's blog entries often begin or end with a thought-provoking quotation. She recounts her experiences of
life with ALS with optimism, humor and hope. Visit her blog at:
Jessica's Story
Lanie's Place
Visit Lanie’s Place to view photos and read about
a courageous woman who has battled ALS since 1999. Currently on a feeding tube and ventilator, Lanie’s enthusiasm for
life cannot be dimmed!
Lanie's Place
Claudia's Family
A former flight paramedic and mother of three autistic
children, Claudia brings a unique perspective to the ALS journey. Having witnessed so many instantaneously life-changing injuries
and illnesses, she finds the blessings in having time to anticipate the changes in her own life. She brings an amazing
sense of humor and relentlessly positive attitude to her fight. Check in on Claudia at:
Claudia's Family
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