On this page we'll include some favorite places on the web, places
you can visit to find out more information, learn about other families who are battling ALS, and find updates regarding important
research.
The Les Turner ALS Foundation
The Les Turner ALS Foundation has become our home within the ALS community.
The foundation provides funding for leading-edge research, offers much-needed patient services to help
ease the burden of living with this disease, and works tirelessly to spread awareness of this little-known killer. If you'd
like to get involved, the foundation offers volunteer opportunities throughout the year.
Les Turner ALS Foundation
ALSA
The ALS Association is the only national not-for-profit health organization dedicated
solely to the fight against ALS. ALSA covers all the bases: research, patient and community services, public education, and
advocacy. ALSA's mission is to find a cure for and improve living with amyotrophic lateral sclerosis.
ALSA website
MDA
The MDA (Muscular Dystrophy Association)
provides many services to the ALS community, including funding for research, ALS clinics, equipment loans and funding, and
other services for ALS patients and families.
MDA
Augie's Quest
ALS Advocacy Community
The ALS Advocacy Community provides a forum for ALS patients, caregivers, health professionals and
advocates to brainstorm ideas, ask questions and share stories within a safe, secure environment.
ALS Advocacy Community
ALS Registry
If you have ALS, there is a website
where you can register to share your experiences and find out what other ALS patients are doing—what treatments, what's working, what's not, how they are progressing,
how they are raising awareness, etc. Originally
started as a mailing list by fellow ALS patient Bobby Brannigan (diagnosed in 1994), it is now being maintained on the
"PatientsLikeMe" website.
If you are a person with ALS, you can add your name by signing up for a "PatientsLikeMe"
account and filling out your profile. The registry can be found at:
PatientsLikeMe
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