The Latest

Home | The Latest | Thank You | What Is ALS? | About Aimee | Fellow ALS Patients | Links | 350,000 Stories | Contact Aimee | Aimee's Family | ALS Activism | Letters | My Superman | Walk4Life 2006 | Walk4Life 2007 | Walk4Life 2008 | Gala 2008 | Your Turn | Aimee's Writing | A Day in the Life... | An Unforgettable Ride | Kids' Corner | In the News
Archive Older

August 22, 2011

Breaking News!
It's been a very long time since I posted anything, but I'm thrilled beyond words to post this:

Northwestern University Feinberg School of Medicine researchers, led by Dr. Teepu Siddique, have made a major breakthrough in ALS research which was published in the journal Nature today. You can find more of the details about this amazing news at the following link (story and video):

A Major Breakthrough in ALS Research

What Does this Mean?
As we've been seeing the buzz about this news over the weekend, Zack picked up on some of the talk and asked whether there was a cure for ALS. I explained that while the researchers have made a big discovery that will help in finding a treatment ("medicine") or a cure, this doesn't mean ALS can be stopped or cured yet. He looked a bit puzzled, so I searched for an analogy.

"You know how you love baseball?" I asked. He nodded vigorously. "And you like to pitch, right?"

More nodding. "But I like to catch more," he said.

"Okay, well what if I put you outside in the middle of the yard, covered your eyes with a blindfold, and then asked you to throw strikes over the plate. Could you do it?"

He looked doubtful.

"Yeah, I don't think  you could either! It would be really hard to even know which direction to face, right?"

"Yeah, I probably would hit the house!" he grinned.

"Exactly! You could probably throw hundreds of pitches and not be able to throw a strike because you don't have any idea where the target is. But if I took the blindfold off, all of a sudden you'd be able to see right where to throw, right?"

"Well, I can't always throw strikes..." Zack confessed.

"No, of course not. But you'd at least know which direction to face and how far the plate is. Would that make throwing a strike easier than when you were wearing a blindfold?"

"Yeah, LOTS easier!" he said, catching on.

"Well, that's kind of what this new discovery is like. So far, the researchers were trying their best to find a cure, but they didn't really know what causes ALS, so they didn't know exactly where to aim. Now, with this new discovery, it's like the blindfold is off--they have a target which will help them focus their research. They know what's going wrong, so they have a better chance of figuring out how to fix it. Does that make sense?"

"Yep! It's not as good as a cure, but it's still pretty good news!"

Yep, he gets it!
9:33 pm cdt          Comments

Archive Older
Welcome to Aimee's Blah, Blah, Blog...
With great trepidation, we introduce the latest feature on a blog.

We acknowledge the pathetically long gaps between new entries to the website, and we appreciate the gentle prodding from visitors who would like to see more frequent updates about what's keeping us busy. 

So, in an attempt to dispel the notion that Aimee lounges at home all day in her World Series Champions gear (okay, that part is true) with her feet up (never!), eating bon-bons (often) and catching up on the latest trade rumors and spring-training reportswhile Jim is out saving the world in his S-emblazoned red cape, of course—we are experimenting with a blog to provide (weekly? biweekly? monthly?) updates on our activities.

However, come Opening Day, we're not promising anything...

[Note: Aimee is the author of the blog. All first-person accounts are hers unless otherwise noted. Any pro-Cubs entries are obviously the unauthorized work of Jim and should be reported to the proper authorities immediately.]