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August 3, 2010

Both My Arms Fell Off...
...of my wheelchair. And my brakes don't work. And my footrests (feetrests?) won't stay in place. Which means


I've gotta think this is a rarity with ALS. We've had that chair more than four years, and while we're sad to see it go (and not looking forward to buying a replacement), our family is definitely celebrating the fact that I'm still here to need a wheelchair at all!

The memory of going to the medical supply store to buy it is still as vivid as if it were just last week. My body was physically stronger back then, but mentally I was much more fragile. As I glanced around at the shelves of equipment and supplies with smiling senior citizens on the packaging, I kept sullenly saying to myself, I don't belong here. (Also, equally bitterly, Everyone knows you're not really that thrilled about your commode.)

I remember trying gamely to joke around with Jim about "pimpin' my ride"--chrome rims, custom paint job, leather seat, neon underglow lights. My heart wasn't really in it, though. And we never got around to more than putting a couple of magnets on the sides.

This time when we go shopping for my new wheels, I still won't want a wheelchair. But when I joke around about pimpin' my ride, I'll have the inner strength to mean it.

(But I'm still not ready for a commode, no matter how wide the grin of the sweet old lady on the package.)

8:12 pm cdt          Comments

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Welcome to Aimee's Blah, Blah, Blog...
With great trepidation, we introduce the latest feature on a blog.

We acknowledge the pathetically long gaps between new entries to the website, and we appreciate the gentle prodding from visitors who would like to see more frequent updates about what's keeping us busy. 

So, in an attempt to dispel the notion that Aimee lounges at home all day in her World Series Champions gear (okay, that part is true) with her feet up (never!), eating bon-bons (often) and catching up on the latest trade rumors and spring-training reportswhile Jim is out saving the world in his S-emblazoned red cape, of course—we are experimenting with a blog to provide (weekly? biweekly? monthly?) updates on our activities.

However, come Opening Day, we're not promising anything...

[Note: Aimee is the author of the blog. All first-person accounts are hers unless otherwise noted. Any pro-Cubs entries are obviously the unauthorized work of Jim and should be reported to the proper authorities immediately.]