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September 18, 2007

Quick Reaction
Um, maybe it's a good thing I can't dance anymore!
10:56 pm cdt          Comments

E.T. Phone Home (or your Senator)!
For all you readers out there who have asked how you could help...this one's for you. Often it's hard for us to think of ways to help us. We're managing all right so far, and we really are trying to keep our household as normal as possible. Or as normal as it ever was, anyway.

But we have a request. And the great news is it costs nothing but a few minutes of your time. (And yes, even E.T. could do it, so not being an ALS expert isn't a good excuse!)

Tomorrow, September 19, ALSA is organizing a "National Call for a Cure" Day. To participate, you simply follow this link to ALSA's webpage about the National Call for a Cure, type your zip code in the "Call Now" box, and click "Go!" The next page will contain information for calling your Senator, including a short script either urging them to sign on as a co-sponsor or thanking them for co-sponsoring and asking them to encourage their colleagues to do likewise. That's it.

Can you use a phone? Good. Then you can help out with this quick and easy way to make a difference.

Can't use a phone? Don't like to? Yeah, me either! ("Lady, are you okay?" "So, let me guess...three-martini lunch?") Lucky for us, ALSA provides links for us to be able to email our Senators instead! Just follow the same instructions as above, but follow the directions for emailing instead.

Either way, there is power in numbers! Please, please, please take a few minutes out of your day tomorrow to help us make our voices heard!

4:43 pm cdt          Comments

'Twas the Night Before Nightline

So yeah. Here I am again. Up late, skulking around the kitchen, mindlessly opening the fridge, checking the pantry--not really hungry, just restless. I retreat to the couch empty-handed.

I check the computer. No Craig. Ugh. Where is my crazy night-owl sibling when I need him?

So I'm sitting on the couch, tuned in to--what else?--Nightline, and an IM pops up. (Thank goodness I have more than one crazy night-owl sibling!) After briefly exchanging our thoughts on the promo that just aired for tomorrow's show, Ren
ée offers up a terrific suggestion. 

I think a 'night before nightline' blog would be a great thing!" she says.

Well, anyway, it's not a rap!

'Twas the Night Before Nightline
’Twas the night before Nightline, when all through my home
Not a kiddo was stirring, I sat up alone.
The Tivo was set on the TV with care,
In hopes that John Donvan soon would be there.

The children were nestled all snug in their beds,
While visions of Pokemon danced in their heads.
And Jim, who had just checked the latest Cubs score,
Had now settled down, and he'd started snore.

When on the TV there arose a promotion,
for our segment tomorrow. Oh, what a commotion!
Away to the sofa I flew like a flash,
(Not really, I’m no longer able to dash.)

The grave face of news anchor Terry Moran,
Gave a brief touch of sadness as our promo ran.
Then, what to my wondering eyes should I see,
But my very own face! Right there! On TV!

With a serious face, and a frown on my brow.
(I think you should know I’m not glaring right now.)
It’s hard to speak clearly. I must concentrate.
But I’m really not mean! I can’t help my face!

"Ask Marty! Ask Patty! Ask Kelly and Jim!
Ask Eunice! Ask Curt! I’m not mean to them!
I try to be friendly! I’m usually nice!
I don’t know that frowner! I’m not made of ice!"

As deep lines before Botox often surround the eye,
So my face betrays years (and too much French silk pie).
So please if you’re watching tomorrow, beware!
I’m not angry. I am simply speaking with care.

And then, in a twinkling, I saw my sweet Em,
And reminded myself “I’m doing this for them.”
This story is not about how I look or sound,
It’s about spreading the ALS story around.

The kids who are out there, who don’t know of Lou,
I’m doing this for them; I'm doing this for you.

There are thousands out there who are patients like me,  
And more on the way. Who knows who they’ll be?

ALS strikes the young. It strikes women and men.
And in some families it strikes again and again.

That’s the reason we signed up to be on this show,
This disease is a killer everyone should know.

Lou Gehrig and Morrie have been its best faces,

But their names are unknown in too many places.
So we’ve got to keep trying to get the word out.
For as long as I can, I will (figuratively) shout!

We'll be there tomorrow sharing our views,
On ABC, after the late local news. 
But that's just one story, told on just one night.
We need lots more people to join in this fight.

When we all pull together, great things can be done.

I’m confident someday this war will be won.
So please do your best to help get out the word,

We need lots of help for our voices to be heard.

I’m awfully nervous. A lie I can’t tell.

I hope we represent ALS families well.

I’ve got to remember that we did our best.

And now I must go up and try, TRY to rest!

1:07 am cdt          Comments

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Welcome to Aimee's Blah, Blah, Blog...
With great trepidation, we introduce the latest feature on a blog.

We acknowledge the pathetically long gaps between new entries to the website, and we appreciate the gentle prodding from visitors who would like to see more frequent updates about what's keeping us busy. 

So, in an attempt to dispel the notion that Aimee lounges at home all day in her World Series Champions gear (okay, that part is true) with her feet up (never!), eating bon-bons (often) and catching up on the latest trade rumors and spring-training reportswhile Jim is out saving the world in his S-emblazoned red cape, of course—we are experimenting with a blog to provide (weekly? biweekly? monthly?) updates on our activities.

However, come Opening Day, we're not promising anything...

[Note: Aimee is the author of the blog. All first-person accounts are hers unless otherwise noted. Any pro-Cubs entries are obviously the unauthorized work of Jim and should be reported to the proper authorities immediately.]